Don’t even bother asking us if we are swingers, cause we aint. Also in this episode – new year resolutions, end of the year crime log, and Ema tears Tom a new one. . .again. 
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It's been a few weeks since I posted an Ema update, so here's what's happening. Ema is undergoing her 4th week of radiation therapy on the tumor site (leg). She is doing very well with only minor fatigue and very little blistering.
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See, I knew if I just quit talking about it and actually DO IT, we'd get another show to you fine folks. In this episode Ema and I attempt to fill you in on the past couple of CRAZY months.
We've all seen them. The headphone-wearing people dancing on the corner, with their signs advertising everything from new home sales to pizza by the slice.
Great News! We received the PET/CT results yesterday and they show no signs of abnormal cell activity!
We’re waiting for the results of Ema’s PET/CT scan done Monday. It’s hard to wrap my mind around the gravity of these tests. In the time frame of one phone call from the radiologist, our future will be disclosed. If we hear “All clear” – then we take a deep breath and continue as planned with the radiation treatments this week, and schedule another full-body PET/CT scan for a few months from now. If we hear “We see some areas that concern us” – then our hearts sink into our guts and we succumb to the inevitable shock while frantically phoning our team of oncologists.
Yes, these are very stressful times, but somehow we persevere. As much as I hate having our future hinged on the results of a test, I’m glad we opted to get this test done. It wasn’t presented as an option by any of Ema’s oncologists. She heard about it from the lab tech who performed her
“Something Good Could Happen!” Ema wrote that in large, block letters on a sheet of note paper then taped it next to the computer monitor in our bedroom. You can see it from any point in the room, and I find myself glancing at it often – especially in the quiet of the evening after the kids have gone to bed. I like the simplicity of it, the humbleness, and the fact that it so adequately summarizes our struggle to stay optimistic in the face of this disease.I’m thinking of adding another note to adorn the left side of the monitor. It will read, “We Have Today.” That’s something I’ve been giving a lot of thought to lately. In a world where anything can happen at any time – fire storms, accidents, cancer – that message seems to be both universal and personal at the same time. There’s that theme again – the more personal you become, the more universal you become as well. See – like it or not, we’re all in this together. Thanks for coming along for the ride.
- Tom
Thought I'd add a happy photo to the blog for once. I took this one last weekend at the annual St. Hedwig Autumn Festival at the high school up the street.
Ema and I are feeling the weight of the reality that is 'living with cancer.' After a terrifying first month we came into a period of relative relief as test results showed no signs of metastasis. Then the meeting with the sarcoma specialist at UCLA confirmed the gravity of our situation. No bad news, per say, just nothing real positive to hang our hopes on. Further meetings of the sarcoma team brought a confirmation on the tumor type - a high grade, undifferentiated, malignant pleomorphic sarcoma. I plugged that tongue twister into Wikipedia, and it came back with an error message stating that three server farms exploded while trying to find information on it. Don't bother looking it up on Google either. It's so rare that you'll be lucky to find a few scattered, obscure clinical trials dating back to sometime before the death of disco.
Ema update 10/06/07 - Ema and I met with the sarcoma specialist at UCLA yesterday and he confirmed the seriousness of the condition, but also told us that it's encouraging that her lung scans are clear and the biopsy from the tumor margins is also clear. We are at a good place to begin treatment. Looks like radiation therapy will begin in about one week. That involves treatments seven days per week for five weeks. After that we'll have to decide whether we want to pursue chemotherapy.
